4th Global Conference

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Wednesday 12th July - Friday 14th July 2006
Mansfield College, Oxford

Conference Programme, Abstracts & Papers

Session 7B: Moments of Death and Interventions at the End of Life
Chair: Bodil Ellefsen


The Moral Problems of some Forms of Medical Intervention in Elderly Demented Patients
Harald G. Kratochvila
Department of Philosophy, University of Vienna, Vienna, Austria

Withholding and withdrawing life saving medical treatment (LSMT) are common medical practice in European Hospitals. Recent data from the Netherlands and Belgium suggests that nearly 40 % of all deaths are due to Medical Decisions Concerning the End of Life (MDELs), including physician-assisted death (euthanasia and physician-assisted suicide), alleviation of symptoms with possible life-shortening effect, and non-treatment decisions. For example, although in 2001 less than 3% of all deaths in the Netherlands are the result of euthanasia and physician-assisted suicide academic and public discourse focus on the moral permissibility of both of them, neglecting the problem of withholding and withdrawing treatment. In comparison with practices of physician-assisted death, non-treatment decisions are less often regulated, overtly discussed or subject matter of academic and public discussion. The frequency of non-treatment decisions change due to old age - the elder the patient the more often such decisions are made. These descriptive results are to be in need of serious consideration especially against the background of increasing withholding and withdrawing nutrition and fluid in elderly demented patients.
The practice of medicine is object of various normative regulations - law, professional ethos (ethics) and ethics (medical ethics). From an ethical point of view some non-treatment decisions are morally justified and others are not. Which are the moral relevant facts determining the respective moral judgments? Substantial moral concepts like the doctrine of the double effect (DDE), the sanctity of life (SL) or the act-omission distinction come to one's mind. But what about the aims and goals of medicine? What about medical futility and the significance of physician-patient relationship? One has to deal with all the mentioned components to be able to offer a reasonably justified moral judgment about non-treatment decisions with fatal outcome.


Death and the Maiden: End-of-life Policy in the USA: The Interplay of Technology and the Iconography of the Female Body
Regis A. De Silva
Cardiovascular Division, BI-Deaconess Medical Center, and Harvard Medical School, Boston, Massachusetts, USA

Medical technology enables the extension of the dying process in coma and persistent vegetative states, where patients are kept alive by drugs and mechanical devices. These technological possibilities have provoked debate over a legal definition of death, the circumstances in which treatment should be withdrawn and the grounds on which such decisions might be justified. These controversies have usually been analysed in terms of doctors’ fears of liability, concerns over the sanctity of life and the need for viable organs for transplantation.
Our argument in this paper is that end-of-life policies in the USA, on a deeper level, have been driven by the fact that all of case law in this area has concerned a succession of three young white women in their twenties, Karen Quinlan [unconscious 1975-1985], Nancy Curzan [unconscious 1983-1990] and Terri Schiavo [unconscious 1990-2005]. Decisions over whether to maintain them in an unconscious state or to withdraw life-preserving treatment have proven to be controversial. Legal and political involvement of activists, politicians and the law escalated with each case, culminating in interventions at the highest levels of government, as end-of-life and beginning-of-life issues became conflated.
The iconography of the female body in popular myth and culture positions these women as “sleeping beauties” awaiting the kiss of life. Yet, simultaneously, they suggest a powerful denial of death and evoke our fascination with the “undead”.
We explore the nexus between unrealistic expectations about the power of medical technology, salient case law, and representations of the female body, juxtaposed with concepts of fertility and death in popular culture.

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Contemporary Constructions of the 'Moment of Death'
Christine Valentine and Glennys Howarth
Centre for Death and Society, University of Bath, Bath, UK

The ‘moment of death’, once a dominant concept in relation to preparing for a ‘good death’, has been eclipsed by a focus on the wider concept of the ‘dying trajectory’. An individual’s dying moments have become merely the end point of a complex and uncertain process that has been constructed as either the ‘medical bad death’ or what ought to be our ‘final stage of growth’ (Kubler-Ross, 1979). This reflects changing belief systems and practices, in which a secular, medicalised management of dying has replaced the traditional deathbed preparations or ars moriendi designed to ensure the soul’s safe passage to the afterlife. In a medicalised, institutionalised system of dying the family’s presence at the deathbed may not always be practical or possible. Dying trajectories are uncertain, hospital schedules must be negotiated and people may live at a distance.
However, findings from interviews with twenty-five bereaved individuals suggest that an individual’s final moments may still be experienced as highly significant in their own right.  In some accounts the dying individual’s final moments did not feature or made little impression, either because the survivor was not present, or there was no obviously definable moment, or because other, usually medical factors, such as whether to resuscitate the person, took precedence. However, for a small number of individuals, the moment of death was constructed as a profound, special and memorable event. These constructions are also important in relation to what they reveal about current values, fears and hopes about death. The discourses that inform them are explored in relation to the role they played in making sense of the dying experience and the achievement of a good death. Consideration is given to the relationship of the moment of death to the dying trajectory as a whole and to its impact on the bereavement experience.

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